Monday, June 20, 2022

Chronic Inflammatory Demyelinating Polyneuropathy

CIDP tingling in arms and legs. Gradual weakening of the arms and legs. Loss of reflexes. Loss of balance and your ability to walk. Loss in feelings in arms and legs. I have gone thru hell, and so many diagnosis's, that have walked into one more symptom. Getting weaker and weaker over the years. So many ER doctor's, and neurologist sports medicine specialist, Just trying to get the diagnosis in my back what I went thru and it kept coming up, a diagnosis. Took 3 years to get that. 

Then when I got here in 10/04/2016 sight unseen. Being taken back to my hand's and the knots in my back and neck. My toes the burning and tingling but now Morten's neuroma. Which I discovered also just like that first x-ray. Being patronized by another doctor asking why it hurts here and next time over here? That's why I'm here. A diagnosis and help but noooo. I found it on my own. Scoliosis and Kyphosis. No S Curve. I'm pedaling out between shoulder blades the fucked up sacrum and tail bone.

My hip sockets crooked and shifting. All those miles walking thru the pain, all I did was stretch my back leg's and hip socket's and hold the front of my thigh and calves tight. All those year's, all those knot's being patronized and treated like a liar and a guinea pig on your bullshit solution's to pain. U doctors serve a system an insurance and a stock machine, not man. It pisses me off that My fatigue first my hands then arms, what do I have an infection in the lining of my stomach and intestines' that Got bad in the spring of 2016. 

All the while my deep fatigue, up anywhere from 3 to 5 in that bathroom every ten minutes. I wanted to go back to the woods. I was getting weaker and more tired. Crashing for 3 to five hours at a time. It took me until the summer of 2017 to get an answer from a hip x-ray that was unneeded. Then I find out from doctor who did upper GI and Lower GI. The infection cleared but still just showing as black spots. to think. that it was I now why they had me go into the hospital and get them to listen. I drank very heavily. To C what it's like physically and to lose more right's.

Having to here the words again psycho sematic just like Alex and the Judge. It just had to be sum obscure thing. The Knott in my neck and my left shoulder, then arm, then as it got bigger and harder I could feel the pin pricks behind my eye. I was still not on a large dose of pain meds and for over a year that non narcotic, that jacked me up. My physical allergic reaction these symptoms of my leg muscles weak necking until the front and back muscles don't work.

Like 18 months after this knot finally got an answer, Complex migraines that have stroke like symptom's. all the while my left leg down low and the sciatica in hip socket, constantly rolling it out to keep going. What's weird is sometimes being completely paralyzed, not even your hip sockets will move. A doctor on Friday called me back over an upcoming appointment, for Home Healthcare stuff. This doctor asked my symptoms, I told her is that it progressives almost every time it comes on. No rhyme or reason. I can't find the pattern. This time in my last hospital stay the process started for Home Healthcare.

I said in 2018 I couldn't do my walks at all. Couldn't get next door or come back with a load of laundry and trust my leg's. The dizziness, my leg's are doing their own thing. This doctor asked if I had a stomach infection in the past? I said yes, like 7 years ago my body is shutting down my fatigue and weakness, Feeling like my balance and equilibrium are off.  I just knew once again I could make this once again about something that hasn't anything to do with it.

She told me her husbands doctors name. The name of this disease. What the treatment plan is like a year. Being seen or treated twice a week. Something about large amount's of steroids. All these years once again being controlled, judged for my pain and ignored. Patronized all the way. Sent to physical therapy 10 times. Which is why freedom wears a blanket on her left shoulder. There ain't no Freedom up in this house. I said chest pain because this time the jaw, ear, mouth accommodated with chest pain that comes and goes randomly. It affects your muscles your heart is a muscle. I have more questions. Being this rocks petrified tree of life? My father took me to the petrified forest. I try to hold onto being told that I will get back anything I've ever lost. I fell to my knees with right hand in air bawling. Feeling the blessing the energy. Still having no idea what this is about.

Truth be told I can't do this another year. Even though I have a walker which only work's when my leg's are strong enuf to lift me up. The wheel chair is to much weakness to even crawl, or make a plan to fall off couch or toilet down to the floor. The scooching the crawling. The pain in my left jaw I thot was part of the complex migraines which after I slowly learned more. Can't speak, left eye is dark. The twitching. Standing there or getting ready to move. I don't stagger I just dead fall as my muscles and ankles go out. 

She the doctor who asked the question's and told me the name symptoms and treatment plan. I know I need to go in. I can't wait. No matter what I don't have a year of even knowing what I know. I never know tomorrow or if later today what stage I'll be at. When it's going to come on? What stage is it going to come on? I have to do this video. This time I want it done by 4th of July. My family reunion. 

Oh yeah 7 years ago sent to Seattle over a clogged gland. Dentist concerned cancer. Now 7 years later still there but the whole center under tongue is swollen and down the middle a red line. Like a cut and all under tongue especially on left side its all swollen. My tongue is numb. I've only had the last few day's jaw pain. that goes into ear and nothing I have is taking it down pain wise. This is just one of the what I think is it the chronic migraine? Is it the CIPD that brought these symptoms on this time? Then I find under dental pain in jaw and ear pain. Cancer. I hate that C word.

Of course it just can't be an infection of the gland? It started out like 2015 looking like a gird tongue with a white tip that I pushed out later with my tongue but the long swollen gland that looked like a bird tongue remained and now painful and altered.

Oh yes 2 other things the doctor that said to Michael Psycho Sematic. It's in my head. I'm doing this to myself. Michael got pissed stopped her from speaking with his hand up. He said I know here she wouldn't do this. I've been here care giver watching her get worse. Then he said this is not about alcohol. Know matter what she takes these symptoms keep coming back with nothing and no rhyme or reason. 

The nurses took it upon themselves to cut my hair that was finally where it needed back to. Plus the Shekinah her twin flame the Holy Spirit. In 2015 first I'm looking out of her eyes then down upon her. That's when I saw the Bodice fitting medieval white gown. Her hair. Like I used to wear mine. My weddings. I didn't know if it was a storm I was sensing because later it was a war. Snow or ash?

I want this over. I want to break the chains that bind. Give U back your heart. Give U back your Faith. Truth behind Love and our cock blockers of Love and evolution.





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